Medical Assistance in Dying and Disability Rights
Abstract
Disability rights activists have raised strong criticisms regarding the liberalization of Medical Assistance in Dying (MAID) as a dehumanizing practice of those whose lives are deemed less valuable by a prejudiced society. However, as with abortion and women of colour in the United States, disproportionate access to a controversial service does not inherently point to an oppressive practice. Addressing the attitudes of practitioners and ensuring equitable power relationships between the patient and medical staff are contemporary means of addressing the complaints of disability rights activists, but restricting access to a harm reducing service while waiting for systemic social change only puts an undue burden on those who need redress now.References
Arstein-Kerslake, A. (2021). Vulnerability Created by Legal Capacity Denials. In Legal Capacity & Gender (pp. 117-134). Springer. https://doi.org/10.1007/978-3-030-63493-3_5#DOI
Beuthin, R., Bruce, A., & Scaia, M. (2018). Medical assistance in dying (Maid): Canadian nurses’ experiences. Nursing Forum, 53(4), 511-520. https://doi.org/10.1111/nuf.12280
Browne, A., & Russell, J. (2016). Physician-assisted death in Canada. Cambridge Quarterly of Healthcare Ethics, 25(3), 377-383. DOI: 10.1017/S0963180116000025
Bryden, J. (2021, February 17). Senate passes amended version of assisted dying bill after days of debate. CBC News. https://www.cbc.ca/news/politics/senate-maid-bill-third-reaading-pass-1.5917798
Bryden, J. (2021, February 23). Government agrees mentally ill should have access to MAID – in two years. CTV News.
Chochinov, H. (2016). Finding a balance: Canada’s law on medical assistance in dying. The Lancet, 388(10044), 543-545. DOI: 10.1016/S0140-6736(16)31254-5
Convention on the Rights of Persons with Disabilities. (2006). United Nations. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/convention-on-the-rights-of-persons-with-disabilities-2.html
Dembo, J., Schuklenk, U., & Reggler, J. (2018). “For their own good”: A response to popular arguments against permitting medical assistance in dying (MAID) where mental illness is the sole underlying condition. The Canadian Journal of Psychiatry / La Revue Canadienne de Psychiatrie, 63(7), 451-456. DOI: 10.1177/0706743718766055
Downar, J., Fowler, R., Halko, R., Davenport, H., Hill, A., & Gibson, J. (2020). Early experience with medical assistance in dying in Ontario, Canada: A cohort study. Canadian Medical Association Journal, 192(8), e-173-e181. DOI: 10.1503/cmaj.200016
Government of Canada. (2016). Legislative background: Medical assistance in dying (bill C-14). https://www.justice.gc.ca/eng/rp-pr/other-autre/ad-am/ad-am.pdf
Hales, B., Bean, S., Isenberg-Grzeda, El., Ford, B., & Selby, D. (2019). Improving the Medical Assistance in Dying (MAID) process: A qualitative study of family caregiver perspectives. Palliative & Supportive Care, 17(5), 590-595. DOI:10.1017/S147895151900004X
Health Canada. (2020). First annual report on medical assistance in dying in Canada, 2019. https://www.canada.ca/en/health-canada/services/medical-assistance-dying-annual-report-2019.html
Holmes, S., Wiebe, E., Shaw, J., Nuhn, A., Just, A., & Kelly, M. (2018). Exploring the experience of supporting a loved one through a medically assisted death in Canada. Canadian Family Physician, 64(9), e387-e393. https://pubmed.ncbi.nlm.nih.gov/30209112/
Jones, R., & Jerman, J. (2017). Population group abortion rates and lifetime incidence of abortion: United States 2008-2014. American Journal of Public Health, 107(12), 1904-1909. https://doi.org/10.2105/AJPH.2017.304042
Lemmens, T., & Krakowski-Broker, L. (2020, November 10). Why the federal government should rethink its new medical assistance in dying law. CBC News Opinion. https://www.cbc.ca/news/opinion/opinion-medical-assistance-in-dying-maid-legislation-1.5790710
McLean, S., & Williamson, L. (2007). Impairment and disability: Law and ethics at the beginning and end of life. Routledge-Cavendish. https://doi-org.ezproxy.library.ubc.ca/10.4324/9780203944981
Nuhn, A., Holmes, S., Kelly, M., Just, A., Shaw, J., & Wiebe, E. (2018). Experiences and perspectives of people who pursued medical assistance in dying: Qualitative study in Vancouver, BC. Canadian Family Physician / Le Médecin de Famille Canadien, 64(9), e380-e386. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6135118/
Reel, K. (2018). Denying assisted dying where death is not ‘reasonably foreseeable’: Intolerable overgeneralization in Canadian end-of-life law. Canadian Journal of Bioethics / Revue Canadienne de Bioéthic, 1(3), 71-81.
https://doaj.org/article/092756bd9a234abaac9e44a570619de4
Riddle, C. (2017). Assisted dying and disability. Bioethics, 31(6), 484-489. DOI:10.1111/bioe.12353
Stainton, T. (2019). Disability, vulnerability and assisted death: commentary on Tuffrey-Wijne, Curfs, Finlay, and Hollins. BMC Medical Ethics, 20(89), 1-6. https://doi.org/10.1186/s12910-019-0426-2
Wallace, C. (2017, September 27). Euthanasia a choice for people with disability? It’s a threat to our lives. The Guardian. https://www.theguardian.com/commentisfree/2017/sep/27/euthanasia-a-choice-for-people-with-disability-its-a-threat-to-our-lives